He who pursues righteousness and loyalty Finds life, righteousness and honor.

(Proverbs 21:21 NASB)

Changes to the Definition of Autism

It has been brought to my attention today that there are plans to make changes to the definition of Autism. Being that our 11 year old was diagnosed over 2 years ago with Aspergers Syndrome, it hits us close to home. I have seen such great positive improvements in his issues since he started getting appropriate services and supports. Below is a quote from SocialMoms

Proposed changes in the definition of autism would sharply reduce the skyrocketing rate at which the disorder is diagnosed and might make it harder for many people who would no longer meet the criteria to get health, educational and social services, a new analysis suggests. The most likely population affected are those with a high functioning child with Aspergers.

My now 11 year old was diagnosed with Aspergers Syndrome in 2009 after being misdiagnosed with ADHD. After the ADHD diagnosis we tried several medications, but had to stop because the side affects were either severe or causing sleep disturbances. I sadly watched a gentle natured boy become aggressive trying to defend himself in situations that he was a victim when he was being bullied by other children and staff. The lack of necessary social skills and the mimicking of others behaviors were creating much larger problems for my son.

I have had to fight for my son to be retested once the probably true diagnosis was discovered. As well as, fight for my sons rights to receive supports even with an IEP. Thankfully the efforts of helpful service providers that have been able to learn more about Autisms Spectrum Disorders we are all learning affective was to help children that fall within the wide range of parameters. Maybe what would be more affective is not misdiagnosing ADD/ADHD. I do feel they exist and they both have a certain amount of sensory integration issues. Proper diagnosis, appropriate support services could reduce the need for medication and use it when it is the only other alternative. Sensory integration issues plague both groups of kids. I've seen huge improvements with my son since he started receiving sensory breaks and we were able to get financial assistance to enable him to recieve private occupational therapy and in school. C

Too often I have seen people get corralled into the idea that only severe issues should be of importance. Helping someone with Aspergers learn to adapt and make the necessary neurological connects through service supports can enable that child to have an independence as common as driving a car. That is we're my son is today. He has a small window of growth to be able to do something most of us take for granted, simply because he didnt fit parameters when he was a baby. Another thing that he shared with us this week is that he struggles to read cursive writing. His name and small words are easier to make out. Occupational Therapy is the only way to improve his chances of having legible handwriting to fill out paper work, be able to drive a car, read certain types of type sets or someone's note or a reminder.

Hopefully, God willing, and his services aren't interrupted these are things he maybe able to overcome. High Functioning children on the spectrum will need less help later in life than the more severe children. I've seen a child with severe autism make huge changes to be now considered in the Asperger catagory. This child will need help later in life. He was given opportunity through services and family supports to have a much better future. Under the plan to limit services this child could have a very dismal future.

In the long run, helping all the children on the spectrum, better awareness of milder cases and appropriate services and supports would be less burden on the system than limiting assistance to severe cases. I have to wonder how many children ending up in the justice system could have been aided by appropriate services and more accurate screening.

Disclaimer: From time to time I will share information about products and services I recommend and/or use. Assume I may be affiliated with these products or services. For more information read my Disclosure Page

Asperger’s & School — Update

I wrote back at the beginning of the school year about moving our son to a different school in our district. This has been a fabulous school year. They are recognizing his asperger symptoms rather than treating him like a delinquent.

We started off with the old school staff leaving a bit of a bad impression but the new school staff did try to look at him with fresh eyes.

He has been finally seen for who he is, rather than being transformed into what others wanted to be. What the old school staff wanted him to be was unacceptable. I knew he was a good kids, just being bullied by teaching staff. The district staff now knows their peers at the old school where, well to be blunt, fools.

We have him getting the appropriate services, Finally!

He is making progress with the OT. I worry if he will get his brain in gear to be able to drive. I've heard that due to the neurological nature, driving is sometimes not possible. Especially if he develops seizures. He has a habit of getting the order out of sequence. I've watched him try to up his foot out the car door before he pulls the handle. He is getting better with that too. He is young, we will see.

He and his younger brother will be going to a summer enrichment program that the school is putting together for the summer. Between this and he will be getting OT every other week and not once a month this summer. The OT realized when I was talking with her over the summer last year that he had some regresses. They have now hired an extra OT so they can handle the extra work since the main two were slimming their schedules since they had kids home. Which I understand, bottom line, they still are there to perform a service and when you limit your clients you hurt your clients. He is having issues with sensory integration which is not uncommon with Asperger's.

DS#1 will be going into middle school, 6th grade, in the fall. Lots of new things to do and learn. I do think we have a plan in place that will make a better chance of success for him. Last year he had 2 teachers and 2 rooms to go to each day. So he had some added experience in transferring classes. When he goes to the middle school he will have 3 teachers and a lot more transferring. His organizational skills stink! They are working on lists to have in his locker and he worked well with them in the 5th grade.

Now, if we can get through the summer! Both boys were grounded Sunday for not stopping at stop signs. A neighbor caught both of them darting in front of cars and followed them home. Not sure how long the grounding will be, probably a week with a repeat of the rules daily so they REMEMBER. This has haunted me, they seem to have no fear. Is this an kid issue or asperger inherited?

I'm releaved and anxious about DS#1. I guess it is just an added bonus to being a mom.

Disclaimer: From time to time I will share information about products and services I recommend and/or use. Assume I may be affiliated with these products or services. For more information read my Disclosure Page

Oh, Happy School Days Are Here!! & Something Good Blog Hop

I am so glad that we took the summer to do some independent social skills and counseling for DS#5. If this is your first tune into my blog, DS#5 was diagnosed at 9yr with Asperger Syndrome.

** In second grade he was diagnosed as ADHD, I told them he had sensory problems as an infant.

** In the 3rd grade they refused to call me when an issue came up at school, he sat in the hall alone trying to console himself from the bullies.

** FINALLY, someone suggest Asperger in March of 3rd grade, THEN the principal came back from  maternity leave. She put a stop to that nonsense...

** Then I had gotten enough information and requested an evaluation. Surprise!!!

~~To read other articles:     Autism Case Conference
Hiring Hurdle for Young Adults
School Starts Tomorrow

In our simple action of moving our boys, being that they are the last in elementary school, he is getting the correct services, in a timely manner, and will probably be getting additional services as the next few weeks progress.

And you know what the best part is?? One poor excuse for an elementary school principal will be looking for another job, she has misrepresented our son, our family and me. Oh, I'm not the only one, believe me this is not a singled out type thing. This foolish women thinks that an education out ranks experience and her husband teaches high school psychology. Gee! She thought she was an expert, she just didn't have anything to back it up.

You see, during this time we have been dealing with a lot and I do me a lot of adversity. The principal at the old elementary school was not filling in the blanks, she left out the other things that were going on in our lives. I can't talk about it yet, but I will, eventually. We are involved in a court case, our family members are witnesses to a horrible crime. She tried to use the disruptions from that as common place and our bad parenting. I got news for her...

 

So I am joining in on "Tell Me Something Good Thursday"

1. Our son is going to get the treatments and respect he deserves.
2. People are beginning to realize I'm a pretty patient, good, intelligent woman and mother.
3. My DH and kids will be able to get some counseling on why their attitudes need to change.
4. One BAD principal will be de-throned and the 200+ children at the elementary school will be
safer. Very emotionally unhealthy environment.

ALL THIS AIN'T JUST GOOD, IT'S GREAT!!

 

 

Disclaimer: From time to time I will share information about products and services I recommend and/or use. Assume I may be affiliated with these products or services. For more information read my Disclosure Page

SCHOOL STARTS TOMORROW!!

Crayola Third through Fifth Grade Supply PackSchool Starts Tomorrow and I am ready. I love my kids, it is just time for someone else to enjoy their company and help them learn all the fun things that they need to know.

We start at the end of the school year cleaning and taking inventory of supplies we have and what we might need. Have kids in each school level you do get to develop an insiders view of what really is needed. I hit the after school sales in Sept and pick up extras and additional notebooks and consumables.

By going through those backpacks right after school lets out I can also watch for sales through the summer. I have noticed that many office supply stores are running $1 days with many much used items. I had the kids make lists of what they had left, we knew we needed notebooks, pencils, etc and put those right in the backpack. Sunday, we went through the supply list from the store or newspaper and when through the school supply cabinet. All ready for Wednesday!

We have not done so well with the wake up schedules, between blood pressure problems and pre-menopause symptoms, UGH! I did wake up today at 6:30am, I've survived the day. Bed time is coming soon. Then I get to work on another blog I will be launching this week, just about ready.

Hope your school year goes well, I sure hope mine does. I'll fill you in next week on how DS#5 is doing at his new school. I'm anxiously awaiting the Case Conference Committee meeting, say a prayer or cross your fingers, I'm hoping they are more attentive to the intricacies of Asperger Syndrome.

I even got a T-Shirt!!


Enhanced by Zemanta
Disclaimer: From time to time I will share information about products and services I recommend and/or use. Assume I may be affiliated with these products or services. For more information read my Disclosure Page

App Friday: iComm

When I got my iPhone I had no idea how I ever functioned without it. As I got to shopping apps I found that there were quite a few that were aimed at special needs issues. Being that some of these kids can not speak, I never realized how many issues there were that being non-verbal was a component. Please visit this site, check out the apps that so many wonderful people have created, not only for fun, but also for necessity.
They have a Free App Friday with a great variety of apps, you can also follow them on Twitter.

App Friday: iComm

by MOMS WITH APPS on JULY 23, 2010
Welcome to App Friday, our weekly link exchange of family-friendly apps. Today we are featuring iComm from Mias Apps. The developer, Martin Brooks, made this app as a communication aid for his daughter Mia, and their story is no less than inspirational. iComm is an example of how apps developed for people with special needs can make a tremendous difference in daily life (and not just for those it’s intended – but for others as well)...Read more...

Enhanced by Zemanta
Disclaimer: From time to time I will share information about products and services I recommend and/or use. Assume I may be affiliated with these products or services. For more information read my Disclosure Page

Hiring Hurdle For Young Adults with Asperger’s Syndrome

HIRING HURDLE

Young adults with Asperger's syndrome struggle to find jobs

Employment help often lacking for applicants facing difficulties with interviews, workplace interactions

Monday, July 12, 2010  02:50 AM

THE COLUMBUS DISPATCH

...and the school wonders why I am concerned about the lack of attention they give to DS#5. These kids need to be taught how to cope in these situations. It just enfuriates me to think that someone in the educational system is neglecting their responsibilities.
Our son is very intelligent and has the possibility to succeed in a career wit
h a colllege diploma. Tell me that a D is OK and not to be concerned about, when the child can make second runner up in the classroom spelling bee!!


Motor Skills Deficiencies
Asperger's syndrome traits in children can vary, though a common characteristic is the delayed development of fine motor skills and gross motor skills. Children with Asperger's often have difficulty with writing, fastening clothes, and engaging in sports. Occupational therapy techniques can help.

Read more: http://www.brighthub.com/education/special/articles/48256.aspx#ixzz0uEzeuUTM

We are deciding Thursday about moving the 2 boys to another local school. I am at the point that something has to change. He will have an opportunity to be paired with peers that will give him an opportunity to make friends. I have a feeling that the "favorite" kids or the principal's friends kids won't be allowed to bully him.

Ok, I think my vent is through.

Enhanced by Zemanta
Disclaimer: From time to time I will share information about products and services I recommend and/or use. Assume I may be affiliated with these products or services. For more information read my Disclosure Page

Autism Case Conference and IEP

Well, we the parents made a step forward in helping our son Friday. Some of the school staff have had a very bad attitude about our son for sometime. The lack of cooperation in testing him appropriately has had some negative effects on his being accepted by his classmates. This child is very self aware and has developed low self-esteem due to the poor treatment and being so misunderstood. I do so hope that the positive direction continues to move forward so he can succeed and thrive.
http://www.aspergersyndrom.org/

This is my all time favorite autism site on the web!

Wrightslaw is the place to go for info about Special Ed Law. You can search their site for a plethore of Special Education Issues.

Disclaimer: From time to time I will share information about products and services I recommend and/or use. Assume I may be affiliated with these products or services. For more information read my Disclosure Page

Finding The Missing Piece

A few months ago we found out our 9 yr old son has a mild form of autism. It explains A LOT, but leaves some questions and uncertainty. It truly is a relief to know what was happening with him. He is a very smart young man. With the right help he will be able to cope and have a relatively normal life. There are somethings he will have to learn by being taught rather than trial and error. He doesn't understand give and take situations, but he has learned quite a bit in a very short amount of time.

I hope to share some of the trials and triumphs that he and we, his family, experience. He is asking questions that are very mature. Like, when will I stop having therapies? should I tell other kids? will I have more bullies in middle school? does anyone else in our family have this? As most know bullies are everywhere, hopefully we can teach him how to react well so as to defuse the situations as he ages. There is no definitive answer to the therapy, it all depends on how he responds. As for family members, yes, we have some others that have signs of the high functioning kind like him, but none diagnosed. He had no language delay, only fine motor and sensory integration issues. He had occupational therapy (OT) as a baby. He scooted on his butt rather than crawl. We really didn't think he had any other issues. As he grew he seemed powered by an invisible force, full throttle. ADHD? maybe?! A very difficult 4 years of school, if only they looked beyond the energy to see what fueled it. He has attention, his focus is the problem.

The University of California MIND Institute has a lecture series, Understanding and Educating High Functioning Individuals with Autism, a must see 1 hour lecture, view it on there website. Differentiating ADHD and Autism is a very big factor in accurate diagnosis. This is such an important factor in helping your child grow and thrive.

Disclaimer: From time to time I will share information about products and services I recommend and/or use. Assume I may be affiliated with these products or services. For more information read my Disclosure Page
<